NOOSA - Living with ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) fundamentally reshapes every aspect of my daily life.

As publisher and editor of PNG Attitude, I experience firsthand how this complex neurological condition creates profound challenges that are often invisible to others.

ME/CFS is far more than simply feeling tired. It's a serious, systemic illness that disrupts the body's ability to produce and sustain energy.

On most days, even basic tasks like reading, writing, editing or managing website communications can become extraordinarily demanding.

What might take a healthy person an hour can require multiple rest periods, staging over a number of days or become impossible altogether.

My symptoms fluctuate unpredictably. Some days, I can write and engage with our blog's community relatively normally.

Other times, cognitive difficulties—often called "brain fog"—make concentration feel like navigating through thick mental static.

Physical exhaustion can be so intense that typing or even holding a thought require significant effort.

So managing this blog is an act of adaptation and resilience. I've learned to work in short, strategic bursts, usually in the early mornings.

I've recently begun to use assistive technologies, like Claude, which has helped me to write this, and I've adopted a flexible publishing schedule.

You may have observed how PNG Attitude reflects these rhythms, with the timing of publication varying based on my health status.

In sharing these few thoughts, I hope to increase understanding of ME/CFS and demonstrate that disability doesn't diminish creativity, passion or professional commitment.

Our blog, PNG Attitude, remains a priority for me, even as my body demands careful management.

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* Claude is an advanced AI assistant developed by Anthropic, a leading artificial intelligence research company based in San Francisco, USA. Claude is designed to provide intelligent support across a diverse range of tasks, including: deep, contextual conversations; sophisticated writing assistance; complex analytical insights; creative problem-solving; and comprehensive knowledge application. Claude is able to draft a document, break down a technical challenge, explore creative concepts or dive into specialised research.